Tuesday, May 18, 2010

The Mental Health System is designed to make me crazy.

Dr. Brain continued to say that she wasn't sure if this was obsessive compulsive (so the hallucinations are actually obsessive intrusive thoughts and images he cannot stop) or bipolar or schizophrenia. She says his issues are complex. I broke down (FINALLY) in that meeting. She passed me a kleenex box and said "I've been waiting for you to fall apart".

*Blink* *Blink*
I hope I met your expectations. Did you have money riding on it?!?

I shared with her my GREAT concern that the staff isn't observing Thing One. They said Sunday morning (when my Mom and brother and I arrived) that he had a great morning.
Yet, he came out of the lounge looking like his best friend had just died. I seriously appeared like he was going to burst into tears at any moment. But when we asked, he said "I'm fine". Clearly NOT fine. Clearly NOT "great". He sat across the room doodling on a magnet board in the window sill and did not interact with us for some time.

I told Dr. Brain that I was worried that he was going to come home at square one and I'd be sleeping across his doorway again because he thought he'd harm himself or others. She said she was committed to finding out how to help him, that his issues were "complex" and that we couldn't live like we were before he went in. Obviously.

The afternoon only got worse. I took him to a movie on a day pass. Half way through (everything had been fine and he'd been laughing just a moment ago) he suddenly sat up in his seat and looked at me like I was an alien. He said "Mommy?" like he was surprised to see me there. I said yes? Then he said something mumbly and quick, which I thought I heard "we need to go back". I said, go where? He stared at me and slowly said, Nevermind. I said, "what's wrong?". He looked around and said slowly, "nothing". I said "are you confused"? He clearly seemed disoriented and unsure. He said, "yeah, I didn't really know where I was for a few minutes". He then asked to leave although we were only an hour into the movie. On the way out he said he needed to go to the bathroom, and asked me to hold Jack the dog.

He was in there for 20 minutes. Aftermath showed up and I sent him in to check on Thing One. Apparently, Thing One hasn't pooped the whole time he was at the hospital (almost a week now), so he was clearly clearing the decks. We waited outside. When he came out finally he told Aftermath about that moment in the theatre and how he had no idea where he was for a few moments. Then we decided to go to the park so he could ride his scooter. In the car he burst into tears again and I asked what was wrong. He told me he was just "so proud". I said proud of what? He said proud of Jack. I said why? He said "because when I was in the bathroom trying to poop I could hear Jack saying "you can do it!", I've never had a stuffed animal that encouraged me and talked to me and I'm so proud that he helped me through it". He sobbed away in my backseat.


When we got there, he rode around for a few minutes and then went across the parking lot from us, sat down on the concrete with his back to us and sat for a good 5 or 10 minutes. Then he wanted to go to the playground part, so we did. He slid down the slide once and then laid down on the rocks and just stayed there. I finally took him back to the hospital. I talked to the nurse, who mused perhaps I am a trigger for his anxiety and so is the dark. I looked at her sideways because she's clearly out of her god-damn mind.

He had a good day today, I spent a good chunk of the day with him. Except he really has no interest in me. I get there and he goes off to play in the lounge or the gaming room and wants me to wait in his room till he gets back. I don't understand why my son doesn't want to be around me.

I met with the other doctor (Dr. K) who runs the unit and he's telling me that Thing One's continuing on the Seroquel but he doesn't think this is bipolar or schizophrenia and that Noah's hallucinations are a product of severe anxiety. I don't understand that either, its not like these things happen when he's uber-anxious. They just do randomly. So from the sounds of it, I'm going to have a little boy coming home on an anti psychotic and a new SSRI (he's talking about starting Luvox now), which in my opinion leaves us in the EXACT SAME POSITION WE ENTERED UNDER. I'm so frustrated Ive been crying my eyes out because I feel like I did this to him for nothing. I justified the trauma of staying in the hospital by thinking that they'd get to the bottom of what was happening with him. It clearly is not the case. Also - I don't think the left hand knows what the right is doing, especially because both Dr.s are talking about totally different disorders and totally different symptoms. I'm going OUT OF MY MIND.

I really feel like no one is in our corner or committed to helping my son alleviate what is clearly TORMENTING him.

And it's tormenting me.